Posts Tagged ‘caregivers’
Redefining Dementia and Focusing on Wellbeing
Several months ago, I was delighted to write an article highlighting some of the American leaders in dementia care. I will be occasionally spotlighting luminaries from that article who are redefining dementia and focusing on wellbeing.
A version of this piece appeared in Signpost Journal: Journal of Dementia and Mental Health of Older People. This excellent journal from Wales, UK, offers a variety of informational and inspirational articles. I am honored to be a contributor.
Redefining Dementia and Focusing on Wellbeing
Late every afternoon, Roger paces the corridors, pausing at the locked door, fiddling with the keypad, sometimes even setting off the alarm before he resumes his pacing. Instead of labeling Roger’s behavior as “sun downing,” Allen Power, MD, teaches practitioners to ask themselves: Which vital element of health and happiness is missing from Roger’s life: identify, connectedness, security, autonomy, meaning, growth, and joy. By doing this, Dr. Power is redefining dementia and focusing on wellbeing.
Dr. Power is a geriatrician and educator on transformational models of care, with a focus on people living with changing cognitive abilities. He is also the author of two groundbreaking books, Dementia Beyond Drugs and Dementia Beyond Disease: Enhancing Well-Being.
He defines dementia as, “A shift in the way people experience the world around them.”
“I believe that most of people’s on-going distress is due to the erosion of one or more aspects of well-being, from the care environment, and/or the person’s cognitive changes. Imagine these domains of wellbeing as seven glasses being emptied. Start filling the glasses and notice the results.”
As Dr. Power trains and consults with memory care communities around the world, he sees meaningful results from this compassionate approach. Suddenly, Mary is not constantly calling out night and day. Bill is not hitting the aides when they take him to the shower. Roger is not setting off the alarm or trying to open the exit door.
“There’s no sure answer,” Dr. Power says. “You need to understand the individual and experiment until you reach the root of the problem. People may be looking for connectedness. They may feel anxious and insecure. They may be bored.”
If someone is repeatedly trying to leave the building, Dr. Power might ask: Are they feeling insecure? Are they feeling lonely and trying to reach someone they love? Are they yearning to connect with an important part of their identity, such as a beloved garden, horse, dog, or pick up truck?
Working toward an Inclusive Future
Dr. Power uses a strength-based approach to work on enhancing wellbeing. He encourages developing “brain ramps,” cognitive supports that help people move through the day in meaningful ways.
“With this positive approach, I can now look at a challenging scenario and offer insights,” Dr. Power says.
Beyond the care of the individual, Dr. Power believes in examining ingrained rituals and routines of institutionalized care, including all meals at a certain hour, with an aim of moving to a more individualized and meaningful mode of care.
“We can make mundane activities such as bathing or getting ready for bed more meaningful and relational than we normally do in long-term care,” he suggests.
“We need to support people instead of dehumanizing them,” he says. “We need to be inclusive and try harder to understand them.”
Dr. Power believes integration into society is a basic civil right.
“Imagine if people who lived with cancer, arthritis, or diabetes could only live with others who shared their medical condition. There’s a problem with seeing the disease instead of the people,” he says.
Dr. Power is contributing to a future where all communities are dementia inclusive and where dementia is just viewed as another way that people see the world.
For more about Allen Power, MD, internationally known geriatrician, educator, and author , please visit:
Website: http://www.alpower.net
Dr. Power is participating in Dementia Action Alliance’s Reimagine Life with Dementia Conference, June 25-27.
http://daanow.org/wp-content/uploads/2016/10/DAA-Conference_042817.pdf
Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.
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Make Dreams Come True
All her life, my mother dreamed of visiting Japan. She loved Japanese art, food, and culture. But she thought such a trip was too expensive and complicated. Even as Mom struggled with cognitive impairment, her yearning of Japan remained. Then my brother moved to Tokyo and prepared to make dreams come true. He arranged for business class travel for Mom and Dad. He squired my parents everywhere and even set up a meeting with a Japanese master potter. He documented it all with photographs so we could all share in the joy.
Recently Ron and I visited Edencrest at Green Meadows in Johnston, Iowa, to learn more about their memory care work. When Nick Lensch, Assistant Manager, and Susan Babcock, Life Enrichment Coordinator, told me about their Dare to Dream program, I wanted to learn more.
“This program brings happiness to the dreamers living with dementia, their families, the staff, and other members of the memory care community,” Susan told us.
As Susan gets to know each resident, she usually uncovers an unfulfilled dream. She brainstorms on how she can carry out the dream, including who can help from the community.
“Bringing the community in on the dream is wonderful for all of us,” she says.
Once she has the dream planned, she talks to the family. Often the dream experience is one the family treasures. Here are two of the dreams they orchestrated :
Joe had been a star baseball player in high school and a minor league player for a couple of years. He loved all things baseball.
“I wish my sons and grandson could have seen me play ball,” Joe often said.
Susan heard the wistfulness in his voice and created a plan. Partnering with the Iowa Cubs, she arranged for Joe to throw out the first ball during one of their games. Both his sons were there to witness their father, one son flying in from Japan for the event! Joe’s grandson stood by his side for the grand pitch, cheering him on. Then the entire family enjoyed watching the game together. #
Marianne loved to sing and often reminisced about times she and her father sang together.
“I wish I would go on the road and sing,” she often said.
Nick and Susan had an even better idea. They contacted a local singing group and asked if Marianne could perform with them. They were delighted to be part of her dream. Marianne selected favorite tunes. Her face shone with joy as she and the group performed to an enthusiastic audience, including her grateful daughter.
“We believe in embracing the moment,” Nick says. “Making dreams come true creates a string of treasured connective moments.”
To make dreams come true, here are a few tips:
- Listen to each person’s stories and notice favorite ones. Ask yourself, is there a wish or dream tucked into one of those tales?
- Double check with another family member or friend, to see if you’re on the right track.
- Brainstorm ideas to fulfill the dream. What do you need in terms of people, venues, witnesses? Who would enjoy helping?
- Put together a small team and set the time and place. Have someone ready to photograph and video the celebration.
For more ideas on how to make dreams come true, visit:
Nick and Susan
seniorhousingmanagement.org
Don’t forget your own dreams!
Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.
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Adapting Hobbies to Meet Changing Abilities
Years ago, I worked as an activity director at a county home in Butler, Mo. There I learned about adapting hobbies to meet changing abilities. Albert taught me that even when you can’t grip a domino, you can still enjoy the game. Every Wednesday, we dropped him off at the town square for his weekly session. A friend helped him place the pieces and he often won. Sadie taught me the power of memorizing poetry. Though she could no longer see the world around her, she enriched her inner world by memorizing dozens of verses. Visiting her was like opening a book of best-loved poems. The residents all taught me the joy of sitting around a table together, working on a project. Even if the project didn’t work out the way we envisioned, the energy and camaraderie did.
Earlier this year, we had the opportunity to offer a presentation on engaging through creative activities for the National Association of Activity Professionals. These professionals are so vital in helping people stay creative and connected throughout the dementia journey. We were inspired by their depth of knowledge, compassion, and eagerness to learn.
As part of our presentation, we discussed adapting hobbies to meet changing abilities. We shared ideas from Connecting in the Land of Dementia, and our participants offered ideas from their experiences. Here are some tips for adapting hobbies:
Ask yourself: What does the person love most about doing this activity? What are the most important components for them?
For example, for gardeners, is it the feel of their hands in the soil? Is it producing flowers or harvesting vegetables? Is it having something to take care of? Or is it the ritual coffee and cookies enjoyed after the work is done?
For those who like quilting, is it the finished product or making the squares? Is it the companionship with other quilters? Or the texture and colors of the fabric?
For scrapbookers, do they enjoy looking through photos or gluing pictures on the page? Do they like leafing through magazines and cutting out pertinent words and pictures or adding stickers and other playful accents. Or maybe it’s the companionship of working together.
By gathering answers to these types of questions, you can break down the activity’s components and encourage people living with dementia to keep pursuing their interests.
If you have ideas for adapting activities, we’d love to hear about them. For more information on the NAAP, visit https://naap.info/
Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.
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Engaging during the Dementia Journey: One Story and Six Tips
My satchel was packed with potential connectors, not the electrical type, but the emotional, engaging type. I had a sheaf of favorite poems, an Audubon bird book, a list of songs Mom and I liked, some bright red Mardi Gras beads, several colorful scarves, and some paper and markers. I was eager to see what Mom might fancy and I felt prepared for any creative impulse. But as usual, my mom surprised me. When I walked into her room in the memory care community, she was sitting on the bed, fiddling around with a blanket. She smiled and held out her hands. I sat beside her, held her hands, and smiled at her. She laughed. I laughed. She made a little funny face. I mirrored her. I followed her lead until she suddenly gripped my fingers and closed her eyes. I closed mine, but kept sneaking peeks at her. She was asleep, a lazy smile on her face, so I closed my eyes and rested with her. This was one of many ways of engaging during the dementia journey.
Spontaneity and surrender were two of the many lessons my mom taught me during her dementia journey. I loved preparing for our time together, cobbling together ideas to engage us both. Sometimes we sat quietly, leafing through magazines. Other times, I sang Mom show tunes. Still other times, I simply went with the flow and enjoyed Mom’s energy and spontaneity.
My mom has since passed away but her spiritual and emotional gifts linger on. When I visit friends who are living with dementia, here are a few ideas for connecting.
- Choose a quiet space relatively free of distractions.
- Select a time of day when you both have lively energy.
- Bring a project (or projects) you’d both enjoy.
- If the person is shy about creative projects, issue a low-key invitation, such as, “Want to help me with this project?”
- Allow the activity to unfold at its own pace, offering support as necessary and encouragement along the way. Enjoy the process.
- If the activity doesn’t go as planned, don’t worry. Go with the flow and relish your time together.
(A version of this story was originally published in eCareDiary)
Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.
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Art as a Creativity Catalyst: Featuring Grace and Spencer Townley-Lott
How do we keep our sense of connection and creativity through the caregiving journey? That was a question I often asked myself. I wanted to share this story of an extraordinary couple– artist, dementia advocate, and social worker Grace Townley-Lott and her husband, puppeteer, actor, and playwright, Spencer Townley-Lott. Both use art as a creativity catalyst in their work and throughout their lives.
Their elders inspired them. Grace and Spencer were teenagers when her grandmother and his great-grandmotherwere going through a dementia journey. The experience was difficult and impactful.
Grace became a social worker, specializing in older adults and learning how to communicate with people who were living with dementia, often through art.
“It’s incredible how the arts open people up,” Grace says. “Someone who hasn’t painted in 20 years picks up a brush and creates something beautiful. Someone who hasn’t spoken in ages delivers a zinger of a one-liner. Every day, I see how creative people are and the connections that are still possible.”
As Grace unfurled her work experiences, Spencer gained a new understanding of his great-grandmother’s last years. He used those insights to create a critically acclaimed play, Blossom. This play, which utilizes puppets, was funded by a Jim Henson Foundation Grant. It focuses on James Blossom, a retired painter who is living with dementia and his family’s changing relationships.
Caregivers often wonder: “How do we keep creativity alive?” Grace and Spencer were kind enough to share some ideas.
Engaging in New Endeavors: Grace
Try to be in the moment, despite your list of tasks. Respond to and validate emotions. Be willing to go with the flow so you can allow creative sparks.
Pay attention to facial expressions as you invite your loved one to engage. If you start dancing, do their eyes light up and do they laugh? If you offer watercolors and cue your partner to touch the brush to wet paper, does he respond with joy when the color blooms on the page? If you’re having a hard time getting your partner to take a shower, croon a song and waltz with him into the shower. If it doesn’t work, that’s okay, too! But if it does work, it’s a lovely and practical way to connect, create, and take care of physical needs as well.
Sometimes it takes reframing the situation to view the possibilities. An outside person or idea can often expand your thinking.
Creativity Tips for the Care Partner: Spencer
Sometimes, physical actions can help release tension to allow for more creative thinking. Deep breaths and stretching can help you loosen up at first. In the theater world, we start every rehearsal with a physical game or action to help us get focused and leave our stress at the door. Try wiggling and shaking your feet and hands, giving yourself a brief facial massage, stretching as tall as you can, and twisting gently left and right. You’re getting the blood flowing, leaving the worried part of you in the hallway, and getting ready to create.
Allow room for surprises. Try to set the tone by modeling joy and openness. Be willing to try again.
Connecting through Art: Grace
I love viewing art with people who have dementia. Art is so subjective, so there’s no wrong answer to the question, “What do you see?” You can take that first question and lead it along into a fascinating conversation, one question at a time, building a fulfilling conversation with an individual or a group.
In these art viewings, a discussion about a painting can tap into emotions that would otherwise be left undiscussed, or it could lead into a beautiful conversation about the person’s childhood, for example. You never know where the conversation will lead! This creates a failure-free situation where a person with dementia can excel and their answers are valued.
Connecting through Puppets: Spencer
Puppets offer a level of separation for the care partner. For people living with dementia, a puppet’s cues may be simpler to decode, dramatically expressing joy or sorrow. The puppet can place a hand on a shoulder and offer many opportunities for sensory engagement.
Puppets can also encourage intergenerational play, creating connections between family members who may be unsure who to communicate with their loved one with dementia.
Keeping Your Creative Flow: Spencer and Grace
“Creativity is inherent in all of us,” Spencer says. “It’s a muscle you can strengthen. Be patient with yourself. The first day, you can only do one push-up. The second day, you can accomplish two or three. That’s what creativity and artistry feels like. Start small. You are laying the foundation. And it gets easier.”
“Be present and be ready for anything,” Grace says. “By asking your loved ones for advice, truly listening to them, and just being with them, you can form beautiful interactions throughout life.”
To learn more about Spencer, visit
To learn more about Grace, visit
gracetownley.com and theartfuloven.com
Grace is the Director of Truly Inspired Outreach and Education for True Care Home Health.
Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.
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Embracing Person-Centered Dementia Values: The Dementia Action Alliance
One by one, we say hello via video conferencing. We are writers, artists, and arts advocates from all over the country. One sculptor enriches the visual aspects of our meeting by strolling through a museum, giving us occasional glimpses of vibrant art. We meet another artist’s dog. Via video, we see each other’s offices and learn each other’s names and goals. Some of the participants are living with dementia; some are not. All of us are brainstorming ways to use the arts as a catalyst to connect people. Already it is working: through the Dementia Action Alliance, our arts group is already engaging in deep and honest conversation, discussing ways to weave creativity and the arts through June’s conference in Atlanta, and exploring ways we can help others stay connected through the arts.
I have long admired the Dementia Action Alliance and feel honored to be part of their creative process. Their “Person-Centered Dementia Values and Principles” were inspired by the Pioneer Network and have been customized by people living with dementia. Karen Love, Executive Director of DAA, tells us, “Because people who have dementia are the experts, the values are written from their perspective in first person narrative. This orientation helps us focus on what is important.”
Here are some of their core ideas:
Person-Centered Dementia Values and Principles
• I am a person living with dementia. Spend time getting to know me and relating to me as a person with a unique background, life history, interests and capabilities.
• Help me stay connected to what is important to me. Although aspects of my personhood may become increasingly hidden, I am still here.
• A reciprocal relationship is important to me. Autonomy, choices, dignity, privacy, self-determination are fundamental to my well-being.
• Support my holistic emotional, social, physical, cultural, sexual, and spiritual dimensions.
• Promote my personal growth and development. Help me continue to experience purpose, meaning, relationships and enjoyment in my daily life.
• Partner with me, utilize my strengths, and provide the right amount of support and opportunities I need to achieve my goals.
• Some dementia symptoms may interfere with my communication. I communicate the best I can; assume positive intent. Attempt to understand my needs and my reality. Please be compassionate.
For me, reading these principles reminds me how much we are all alike.
For more information on this topic and to learn about the DAA’s upcoming conference:
Conference: Re-Imagine Life with Dementia
You’ll enjoy reading this white paper on Living with Dementia: Changing the Status Quo, DAA
Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.
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Enjoy Dementia Inclusive Holiday Cooking
“Who prepared this delicious meal?” a friend asked during a holiday dinner.
I named my brother Dan, our head chef, first. Then I included the support team—myself, my mom, my daughters and nephews.
“Did I help?” Mom whispered as I passed her the mashed potatoes.
“You sure did,” I told her. ”You mashed the potatoes, put the marshmallows on the sweet potato casserole, and mixed the fruit salad.”
“That’s good,” she said. “I like to help.”
Our desire to help and contribute to seasonal celebrations doesn’t end with a diagnosis of dementia. It’s lovely to linger in the kitchen together, preparing food for the holidays. It’s even lovelier when you can adapt and enjoy dementia inclusive holiday cooking so that people of varying abilities can participate.
Rebecca Katz, author of The Healthy Mind Cookbook, sees food as a great equalizer, something anyone can enjoy regardless of abilities. Fixing a delicacy for someone offers a tangible and delicious way to give back.
Here are some tips so you can enjoy dementia inclusive holiday cooking.
- Leaf through a favorite family cookbook or recipe box and use the pictures and recipes as a catalyst for conversation. Ask open-ended questions, such as, ”What does that brownie recipe make you think of?” “What do you like about the holiday season?”
- Select a special recipe to make together. Choose simple, safe and satisfying tasks, such as measuring, adding ingredients , stirring, and tasting.
- Chose a time of day when you’re both rested.
- Create a comfortable kitchen environment, by playing familiar seasonal songs you can both hum or sing along to. Reduce extraneous noise and distractions, such as a television in the background.
- If you wish, take photos during the experience. That way, you can relive the adventure and share with family and friends.
- Indulge in instant gratification, if possible, by sampling your work when the cooking is complete.
- Even if the person living with dementia can’t help prepare food, he can still enjoy sitting in on the action and the conversation.
Whether you’re stirring a pot of orzo or dropping mint leaves into cool water, enjoy your time of creation and connection in the kitchen.
A longer version of this piece originally appeared on Joan Lunden’s excellent website: Enjoy Dementia Inclusive Holiday Cooking. Thanks to Sue Fitzsimmons, MS, ARNP, Judith Fertig, author of The Memory of Lemon, Kate Pierce, LMSW, Alzheimer’s Association Greater Michigan Chapter, and Rebecca Katz, author of The Healthy Mind Cookbook
Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.
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Shall We Dance?
Normally, I do not like being the center of attention. But when Sebastian Tomkowski asked me to dance the merengue, I said yes. Actually, my first reply was, "I can't dance." But Sebastian assured me he would guide me, literally, every step of the way.
Sebastian is one of the dancers working with Rhythm Breaks Cares (RBC), a non-profit that specializes in bringing the energy and joy of ballroom dance to people who are living with dementia. We were lucky to experience one of RBC's sessions in a New York City care facility.
When everyone was gathered in a circle, Stine Moen, one of RBC's founders, put on some Frank Sinatra tunes. Instantly, one woman danced her way into the room. Her movements were graceful and stylish. When Sebastian invited her to waltz, she readily accepted.
Stine asked a seated women if she'd like to dance. The woman said, "I have this walker and I can't dance with it."
"You can," Stine assured her. "You can use your walker and you and I can dance together."
The woman demurred and sat swaying to the music. But when Stand by Me started playing, she hoisted herself to her feet, grabbed the walker, and began moving rhythmically around the room.
Two men sat in the circle, seemingly not registering the music. When Stine asked if they'd like to dance, one man held out his hand. Stine took his hand and let him guide the movements, while she made fancy arm gestures that looked as though they were waltzing in an elegant ballroom.Click here for dancing ideas.
One woman sat stock still, but sang along when the song "Fever" played.
"I used to be a singer and my husband played the piano," she told me, when I sat beside her. "But I don't remember the words." She then proceeded to croon along with "I've Got You Under My Skin."
The energy from the music and movement seemed to engage everyone. Even a man who seemed immobile, his mouth tight, his hands clenched up near his face, gradually softened his expression and lowered his hands to his lap.As for me, I reveled in the experience, dancing with the residents or smiling and moving our hands in time to the music. And of course, I loved my once-in-a-lifetime merengue experience.
I asked Stine to offer a few tips for care partners who wanted more movement in their lives.
Here are her suggestions.
"We always start with the music." says Stine. "That sets the tone."
Once the music is playing, if possible, make eye contact. Then smile and hold out a hand. Move in ways appropriate to your partner’s abilities.
Celebrate every movement. Even swaying your arms together to the music is a form of dance.
“It's not about getting the steps right,” Stine says. “It's about connecting through music and movement.”
Want to learn more about the power of dance? Visit the RBC website. Good news—RBC offers training for qualified dancers, so they can bring this exciting program to their own communities.
Click here for additional tips from Stine.
Click here for tips from Sebastian.
Read more about creative programs in Connecting in the Land of Dementia: Creative Activities to Explore Together. Order your copy from your favorite independent or online bookstore.
Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.
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Three Benefits of Artistic Alchemy
Last week, I wrote about Julian West and his work with music and dementia. Hannah Zeilig, PhD, is an expert in culture, language, and dementia, who participated in and documented Julian’s program. When I interviewed Hannah, I was inspired by her perspective on arts and communications and wanted to share a few of her key ideas.
“The project showed us that you can converse in so many ways,” says Hannah. “The musicians and the dancer reminded us that we all can communicate without language.”
“One of the questions we’re asking in the UK is ‘How can the arts help with dementia? What can arts do that a game of dominoes cannot?’ ” Hannah says. “The arts help people become brave in how they connect with each other.”
The arts also transcend our dependence on achievement, identity, and memory.
“Being scared of dementia is the biggest barrier,” Hannah says. “In our language and our media, dementia is stigmatized and portrayed as catastrophic. One of the natural and common fears is summarized by this: ‘If I can’t remember where I live and my achievements, how do I know who I am?’
Julian’s work reminds us that we are all creative.
“People with dementia can be brimming with creativity and humor and able to make connections with each other,” Hannah says.
During one of Julian’s sessions, the musicians were playing and the dancer was cavorting around the circle. One resident, Alicia, walked right up, took the dancer’s hands and lead her in a waltz.
At the end of the dance, Alicia was glowing. She smiled and said, “We really just did something.”
And she was right.
….
Other gifts from this work in the arts:
- The residents communicated with more sounds and gestures.
- The staff saw the creative side of the residents.
- The creative atmosphere opened everyone up to alternate ways to connecting.
For more about Hannah and her work, visit:
Deborah Shouse is the author of Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.
COMING SOON: Connecting in the Land of Dementia: Creative Activities to Explore Together
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Orchestrating a Musical Conversation
When Ron’s dad was living in a memory care unit, Ron and I talked with the residents and their families, learning about their favorite songs. We orchestrated a sing-along and had fun working with everyone and putting together a scrapbook of each resident’s special tunes. The combination of music and conversation created a sense of community for us all. Julian West, who we met on a recent trip to London, is creating community through engaging people in music and dance. We really love the way he weaves the two art forms together and wanted to share his easy and adaptable ideas with you.
Julian West had no idea what would happen at the care facility, but he trusted it would be something wonderful. An accomplished oboist and a teacher at the Royal Academy of Music, Julian assembled a violist, a composer, a dancer, and an artist to share energy and their art with people who are living with dementia.
“This was an experiment to see what could happen,” Julian says. “We worked completely improvisationally.”
Once a week, for eight weeks, the troupe came to the residential care home and created a living arts experience with residents and staff. They began by inviting everyone to choose a percussion instrument, such as rain sticks, bells, shakers, tambourine, etc.
“We had a musical conversation,” Julian says. “One person made a sound and another answered. We also chatted a lot. People commented on the music or expressed an emotion or impression.”
The musicians added their instruments and the staff and residents joined in, through percussion and voice. They made fascinating sounds, like an improv jazz singer might do. The dancer twirled around in the center of their circle. Her free movements gave the group a focal point and inspired others to explore various movements.
“I let go of preconceptions and tried to create an open atmosphere,” Julian says.
The artists’ openness helped the “conversation” grow and blossom.
One woman who was living with dementia held up a tambourine, keeping it still and gazing at it as though it were a beautiful and revered object.
Julian’s first thought was, “She doesn’t know it’s a musical instrument”.
“I let that thought go,” he says. “I saw how expressive she was. Her interaction with the tambourine was beautiful and profound and she allowed us all to see the instrument differently.”
Even if you don’t have your own musicians and dancers at home, you can still create this supportive and creative atmosphere.
- Share a few percussion instruments, put on some music you both like, and make some joyful noises. Experiment with bee-bop syllables to add a sense of freedom.
- After the song, talk about the experience, what you liked, what you felt, and any other impressions that came up.
- Consider inviting a “guest dancer,” someone who likes to move to music, or a child of a friend who’s taking dancing lessons. Go ahead and add your own moves.
- Invite friends and family to join you. You’ll have something to laugh, and sing, and talk about.
For more information about Julian’s work, visit: www.julianwest.co.uk
Deborah Shouse is the author of Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.
COMING SOON: Connecting in the Land of Dementia: Creative Activities to Explore Together
