Everyday Heroes and Nine Great Things We Learned This Weekend

This weekend we were lucky to be around a lot of heroes—the staff and grantees of The Brookdale Foundation Group, which supports national Relatives as Parents Programs, along with Group Respite programs.  We loved the sense of commitment and community we felt at this event and we also enjoyed learning from other speakers and the attendees. Here are the nine great things we learned from this weekend’s conference.

I.

Explain

Kent Karosen, President and CEO of the Fisher Center for Alzheimer’s Research, spoke about his new children’s book, Why Can’t Grandma Remember My Name?  Written about the way the brain is impacted by dementia and the affects it has on children, the book is illustrated in brilliantly colorful art, created by children, juxtaposed with art by people who are living with dementia. To learn more, www.alzinfo.org

 

 

 

II.

Reframe

Frances Kakugawa, author of I Am Somebody, spoke of the powerful role poetry played in her caregiving role throughout her mom’s dementia journey. While scrubbing the floor after her mother’s bathroom accident, Frances thought, “There must be another poem here.”  She decided to consider herself a poet-caregiver, rather than a struggling-caregiver. Reframing her image and her language helped her transform her attitude. You’ll enjoy visiting www.franceskakugawa.wordpress.com  and learning more about Frances, her writing, and her many books.

 

 

III.

Play

Who knew you could have so much fun with poetry! Gary Glazner, for one, founder of the  Alzheimer’s Poetry Project, who lead the whole group in a rousing call and response version of several popular poems. Gary added in music, movements, and stoked up our enthusiasm and our energy. We also created a poem together. You’ll enjoy using his ideas to deepen your communications and your connections. Visit www.alzpoetry.com and treat yourself to his book, Dementia Arts: Celebrating Creativity in Elder Care.

 

 

IV.

Support

We were shocked and saddened to learn there are more than one million caregiving youth in our country, struggling to stay in school and keep afloat while taking care of ailing family members. Connie Siskowski’s organization, American Association of Caregiving Youth, provides support for these gallant middle schoolers and teens. To learn more about her program, visit www.aacy.org

 

 

 

 

V.

Care

How many of us take enough time to truly care for and nurture ourselves. Jane Barton, speaker, write, and listener, spoke eloquently of compassion fatigue, born of too much caring for others and not enough focus on self. We laughed, cried, and reminded ourselves of the importance of self-care. Learn more from her at www.cardinalife.com and see her book, Caregiving for the GENIUS: Understand the Journey from the Inside Out.

 

 

 

There were more amazing speakers, but we didn’t get to hear them because we were speaking all day Saturday, sharing two information-packed sessions of Connecting in the Land of Dementia and one session of  our beloved The Hero Project. But just because we were teaching doesn’t mean we weren’t learning. Here are just a few of the tips we gathered from our participants.

 

VI.

Give

As a way of adding meaning and purpose to life,  one memory care day group created dog biscuits to donate to their local animal shelter. They stirred up a healthy mixture of organic ingredients, used cookie cutters, and delighted a lot of lonely pooches.

VII.

Collage

Another day care center helped a non-verbal resident create her own collage. One caring person watched carefully as this elder looked through a magazine, pausing at pictures of interest. Then the caregiver tore the photos that had intrigued the woman. Together, they glued them into a collage that the woman enjoys looking at often.

VIII.

Sing

“Song titles inspire singing and conversation,” one participant told us. She shouts out familiar titles and someone in her memory care group usually sings the next couple of verses, with others joining in. This often sparks a conversation about the song.

IX.

Share

The sense of community and generosity during the weekend reminded us again of why we love doing this work and of the importance of sharing things that work, things that don’t, and asking about things we wish we knew. Often, someone else has an answer for us, usually one of those quiet, but powerful, everyday heroes.

Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.

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Rock with Rhymes that Resonate

The audience was quiet, partially because some of the people were slumped over in their wheelchairs, eyes closed. Gary Glazner stood in front of the group, wondering if he could engage them. He had received a grant to offer a poetry workshop in a memory care unit and he had carefully selected several familiar poems. He’d introduced himself to everyone and he was ready to inspire people through reading poetry. But were they ready for him? He took a breath and began.

“I shot an arrow into the air,” Gary said to the seemingly comatose group.

“And it fell down I know not where,” said an elderly man without even raising his head.

That was the beginning spark for Gary Glazner’s Alzheimer’s Poetry Project, a process he created to help engage and connect with those living with dementia through reading aloud and discussing poetry.

“There are four steps to the process,” Gary explains. “First, a call and response, where I read a line of poetry and the group echoes it. Then we discuss the poem. Next, we add props to the experience and finally, we create our own poem.”

A few of the familiar poems Gary uses include:

The Tyger—William Blake

The Owl and the Pussy Cat—Edward Lear

Wynken, Blynken, and Nod—Eugene Field

How do I Love Thee?—Elizabeth Barrett Browning

Purple Cow—Gelette Burgess

Jabberwocky—Lewis Carroll

Daffodils—William Wordsworth

 

His website, www.alzpoetry.com, is brimming with verse and rich with recommendations.

Gary has shared poetry with people living with dementia all over the world. His usual session lasts around an hour. He often centers his poems on a theme, such as Summer, Birds, Trees, or Food, and enriches the gathering with objects that engage the senses. For example, to supplement summer-time poetry, he might include a bucket of sand and a conch shell. He brings a misting spray to simulate an ocean breeze and lets people smell suntan lotion. For refreshments, he suggests fresh strawberries, lemonade, popsicles, or homemade ice cream. This four-step poetry process also works at home with just two care partners

“Poetry goes beyond the autobiographical memory and offers care partners a way to communicate with someone who has memory loss,” Gary says.

Good news for the Kansas City area: Gary is doing a poetry workshop here in early October. For more information, contact Deb Campbell at kcseniortheatre@gmail.com

For more information on Gary and the Alzheimer’s Poetry Project, visit www.alzpoetry.com 

Gary’s book is a great resource: Dementia Arts: Celebrating Creativity in Elder Care

www.dementiaarts.com/

Dementa+Arts+Book

 

 

 

 

 

 

 

 

 

Deborah Shouse is the author of Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.

 

 

 

 

Rhymes that Resonate: Four Steps for Connecting Through Poetry

The audience was quiet, partially because some of the people were slumped over in their wheelchairs, eyes closed. Gary Glazner stood in front of the group, wondering if he could engage them. He had received a grant to offer a poetry workshop in a memory care unit and he had carefully selected several familiar poems. He’d introduced himself to everyone and he was ready to inspire people through reading poetry. But were they ready for him? He took a breath and began.

“I shot an arrow into the air,” Gary said to the seemingly comatose group.

“And it fell down I know not where,” said an elderly man without even raising his head.

That was the beginning spark for Gary Glazner’s Alzheimer’s Poetry Project. He created this process, which includes reading aloud and discussing poetry, to engage people living with dementia.

“There are four steps to the process,” Gary explains. “First, a call and response, where I read a line of poetry and the group echoes it. Then we discuss the poem. Next, we add props to the experience and finally we create our own poem.”

A few of the familiar poems Gary uses include:

The Tyger—William Blake

The Owl and the Pussy Cat—Edward Lear

Wynken, Blynken, and Nod—Eugene Field

How do I Love Thee?—Elizabeth Barrett Browning

Purple Cow—Gelette Burgess

Jabberwocky—Lewis Carroll

Daffodils—William Wordsworth

His website, www.alzpoetry.com, is brimming with verse and rich with recommendations.

Gary has shared poetry with people living with dementia all over the world. His usual session lasts around an hour. He often centers his poems on a theme, such as Summer, Birds, Trees, or Food, and enriches the gathering with objects that engage the senses. For example, to supplement summer-time poetry, he might include a bucket of sand and a conch shell. He brings a misting spray to simulate an ocean breeze and lets people smell suntan lotion. For refreshments, he suggests fresh strawberries, lemonade, popsicles, or homemade ice cream. This four-step poetry process also works at home with just two care partners

“Poetry goes beyond the autobiographical memory and offers care partners a way to communicate with someone who has memory loss,” Gary says.

For more information on Gary and the Alzheimer’s Poetry Project, visit www.alzpoetry.com.

Gary’s book is a great resource: Dementia Arts: Celebrating Creativity in Elder Care

Deborah Shouse is the author of Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.